Events: Sat 8 Aug 2015 - Future Planning

A personal philosophy on the inclusion of a child with Down Syndrome in the community

This is an interesting story about a family's decision to adopt a newly born baby who has Down Syndrome. The mother describes her and her family's dreams for her son, as well as his own dreams.

Taking on the bureaucratic world

This excerpt from the author's book, Taking On the World (we have this on our book shelves) gives a brief insight into dealing with the bureaucratic world, beginning with bureaucratic responses designed to put parents off.

How to run a group

This paper, written by a Family Support Service worker, provides some guidelines on running a group. It includes strategies for maintaining a group, group leadership and improving member roles. Keywords: Community Development, Families

Parent action in local communities: Cairns regional parent network

This paper contains valuable information for families interested in parent networks and support groups. It describes the Cairns Regional Parent Network, how they formed, and the outcome of a Forum they planned for bringing parents together.

Taking on the World: Empowering Strategies for Parents of Children with Disabilities

The author provides "practical advice on how to take on and overcome the stresses of the family, medical, school, church, work and bureaucratic worlds. She advises parents on such things as stabilising their emotions, organising parent groups to get needed services from government agencies, schools, and the medical establishment.

A Stitch in Time: A study into the respite care needs of families with disabled children in Victoria

This study on respite care by the Children's Bureau of Australia (a non government agency that pursues three main activities nation wide - research, advocacy and information services relating to children) "examines its use for disabled children, providing a comprehensive overview of the characteristics of the population studies and parents'...

Parent Access Handbook: A Summary of Lectures Given at the Parent Access Workshop, Brisbane

This handbook is a compilation of presentations given at a Parent Access Workshop. The general theme of the workshop focused on strategies and skills for affecting positive change in the lives of family members with disabilities.

Friends: A manual for connecting persons with disabilities and community members

"This manual is for anyone who is interested in supporting a person with disabilities to widen his or her circle of relationships and develop deeper friendships.

The Disabled Child and the Family: An Exceptional Parent Reader

This book is a compilation of the "best" (as the editors see them) articles published in the journal, The Exceptional Parent , in the fifteen years to 1985.

From me...to you: Advice for parents of children with special needs

At the time this was published, Anne Whaite was a consultant for the NSW Department of Health and Judy Ellis was the Director of the Commonwealth Office on Disability. Judy is also the parent of a young man with an intellectual disability and the Coordinator of this organisation.

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