Events: Sat 8 Aug 2015 - Future Planning

Parents and community together: Parent questionnaire

STAR, a Victorian family support group, produced a questionnaire for parents regarding the support parents have experienced and what they thought was needed instead or additionally. This paper lists the questions and responses.

People you need on side

This brief article gives helpful examples of parents finding ways to interact with the professionals they must see regularly because of the health needs of their child with a disability. Keyword: Families

Dealing with professionals

This is a pamphlet which provides very good strategies for dealing with professionals, when those professionals are not being as helpful as they could be and when parents feel they are being discouraged from participating in decisions about their child. Keywords: Families, Professionals

Parental reactions and conflicts

This short article lists the common patterns of stress experienced by families who have a child with a disability.

Guidelines to follow....when a child with a disability is born

This pamphlet recognises that the occasion of the birth of a child with a disability needs special management by hospital and medical staff, who should remain sensitive and non-judgemental.

We all need parents but not forever

In this short article, David Brandon argues that parents should not have to be involved in running services for their sons and daughters with disabilities.

Women, disability and caring

The main responsibility for caring for their children belongs to women. This article examines the underlying assumptions about the roles of mothers of children with disabilities and how stereotypical gender roles influence the caring of a child within a family.

Families for all children

The articles in this paper are based on the argument that families whose children have severe disabilities should be supported in as many ways as they need, and that children who cannot stay with their birth families deserve to live with other families.

Cycles of care: Support and care between generations

This article examines the strength of family links between generations and how family members are supporting each other financially, practically and emotionally. It shows how strong family links do exist between generations and that the extended family also exists though not always under the same roof. Keyword: Families

Disability and the family: Life-style not life-sentence

This article focuses on the belief that persons with disabilities contribute positively to their families, their communities, and society. Traditionally our society has focused on the burdens families face when one of their members has a disability - here we learn a little about the strengthening effects disability has.

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